Dr. Wendy D. Jones is in the UK at the South West Thames Regional Genetics Service, St George’s Hospital, University of London, London SW17 0RE, UK.
Dr. Wei-Dong Yao at the Harvard Medical School and Dr. Scharam Akbarian at the Mount Sinai School of Medicine in New York recently published a paper demonstrating a mouse model to study WSS.
Dr. Hans Tomas Bjornsson at the Johns Hopkins School of Medicine is helping to host a clinic on WSS this June in Baltimore, Maryland.
Dr. Mira Jakovcevski is studying WSS at the at the Max Planck Institute of Psychiatry in Munich, Germany.
Are there any research projects being done in Canada? We are followed by genetics at sick kids.
Where can I go to receive more information about the wss clinic in June? My son has wss, but we’ve received very little guidance from doctors. I’d love to be able to gather more information and form a network.
Are there any research projects being done in the Netherlands?
Me ( mom) and our daughter both have been diagnosed with WSS today!. we’re Dutch!
Dear Dr Jones, me (adult woman, 47 yrs of age) and my daughter (17 yrs old) were both diagnosed with WSS today.
I think atypical wss, cause we do not have the most common facial features of the syndrome. Maybe you could add us to your research project.